I wanted to make my blog about something I would be proud of. I also wanted to let people see another side of me. This is why I have decided to make my blog about my rare heart disease, Heterotaxy Syndrome. This disease is uncommon, but I want people to understand why it is so important to me. This is a way for me to let my friends and family understand me more.

I plan on collecting materials for this project by, searching websites that explain what Heterotaxy Syndrome is. As well, I will be taking my own pictures, or have someone’s help. I plan on using myself for the audio recordings and video footage. If I use any footage that I did not make, I will make sure to ask for permission to use it. 

For the first project, I plan on making a poster that explains what Heterotaxy Syndrome is, and why I need a pacemaker. For the second unit project, I plan on making my logo that includes a heart and a pacemaker, since they are the main point of the blog. For the third project, I will talk about living with the heart problem and explain why it is important to know about the uncommon disease. The last unit project will focus on showing how growing up with a pacemaker affected me. 

https://www.ncbi.nlm.nih.gov/gtr/conditions/C3178805/#

This link explains what Heterotaxy Syndrome and where the words stemmed from.

https://www.chop.edu/conditions-diseases/heterotaxy-syndrome-isomerism

This link also explains what Heterotaxy Syndrome is but in more depth. The article also talks about the different types of Heterotaxy Syndrome’s there are. An important topic in the article is focusing on people that are older than 18. I believe it is important especially since I’m 18.

https://rarediseases.info.nih.gov/diseases/10875/heterotaxy

This link has some the same information as the links above. The difference is, that this link has organizations that support Heterotaxy Syndrome. The organizations help connect patients that have the same heart problems, which I think is pretty awesome!